Article | Culture Unbound: Journal of Current Cultural Research | Difficult Questions and Ambivalent Answers on Genetic Testing

Title:
Difficult Questions and Ambivalent Answers on Genetic Testing
Author:
Niclas Hagen: Department of Arts and Cultural Sciences, Lund University, Sweden Andréa Wiszmeg: Department of Arts and Cultural Sciences, Lund University, Sweden Susanne Lundin: Department of Arts and Cultural Sciences, Lund University, Sweden Eva Torkelson: Department of Psychology, Lund University, Sweden Cecilia Lundberg: CNS Gene Therapy, Lund University, Sweden
DOI:
10.3384/cu.2000.1525.124463
Read article:
Full article (pdf)
Year:
2012
Volume:
4
Theme:
Theme: Self-care Translated into Practice Edited by Ã…sa Alftberg and Kristofer Hansson

Pages:
463-480
No. of pages:
18
Publication type:
Article
Published:
2012-11-09


A qualitative pilot study on the attitudes of some citizens in southern Sweden toward predictive genetic testing – and a quantitative nation wide opinion poll targeting the same issues, was initiated by the Cultural Scientific Research Team of BAGADILICO. The latter is an international biomedical research environment on neurological disease at Lund University. The data of the two studies crystallized through analysis into themes around which the informants’ personal negotiations of opinions and emotions in relation to the topic centred: Concept of Risk,’Relations and Moral Multi-layers, Worry, Agency and Autonomy, Authority, and Rationality versus Emotion. The studies indicate that even groups of people that beforehand are non-engaged in the issue, harbour complex and ambivalent emotions and opinions toward questions like this. A certain kind of situation bound pragmatism that with difficulty could be shown by quantitative methods alone emerges. This confirms our belief that methodological consideration of combining quantitative and qualitative methods is crucial for gaining a more complex representation of attitudes, as well as for problematizing the idea of a unified public open to inquiry.

Keywords: Genetic testing; risk; public attitude; responsibility; complexity; ambivalence

Volume 4, Theme: Theme: Self-care Translated into Practice Edited by Ã…sa Alftberg and Kristofer Hansson

, Article 24, 2012

Author:
Niclas Hagen, Andréa Wiszmeg, Susanne Lundin, Eva Torkelson, Cecilia Lundberg
Title:
Difficult Questions and Ambivalent Answers on Genetic Testing:
DOI:
10.3384/cu.2000.1525.124463
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  • Volume 4, Theme:: Theme: Self-care Translated into Practice Edited by Ã…sa Alftberg and Kristofer Hansson

    , Article 24, 2012

    Author:
    Niclas Hagen, Andréa Wiszmeg, Susanne Lundin, Eva Torkelson, Cecilia Lundberg
    Title:
    Difficult Questions and Ambivalent Answers on Genetic Testing:
    DOI:
    10.3384/cu.2000.1525.124463
    Note: the following are taken directly from CrossRef
    Citations:
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